MSPI (milk soy protein intolerance)

well...today I took Jonah to the doctor for a recheck after starting prilosec for his reflux.

To back up a little, from what I have learned about 80% of babies have reflux. And there are 3 types of "spitters" according to our doctor. The 1st type is a happy spitter that is gaining weight, the 2nd is an unhappy spitter that is gaining weight. The last type is an unhappy spitter that is not gaining (or is losing weight). First he put Jonah in the 1st category, but as time has gone on, and he has developed more cranky times during the day/evening, and started having some more congestion and wheezing he got moved to the 2nd category. They started him on zantac. We tried it for over a week and it didn't seem to do much. So I called back because he was getting to the point where he was super fussy for hours at a time some days. (the odd thing, this is somewhat inconsistent...it doesn't happen every day, etc). But anyways, they suggested that we try soy formula and started him on Albuterol nebulizers. Well, after much discussion and a couple more days of screaming we decided to try the soy. After the 1st bottle he screamed for 2 hours straight. After the 2nd he was fine, then after the 3rd, he screamed for another hour straight. I called the clinic and they said he was reacting to the protein in the soy. GRRR! So they said to stop the zantac, start prilosec and go back to the gentlease formula (or try hypoallergenic).

Since hypoallergenic is far more expensive, we hoped that the priolsec would take care of it. Also, we tried gas drops & gripe water over the weekend. We also tried to keep his routine as consistent as possible even though we were traveling. He had a pretty good weekend, crying was within reason. But last night, he was super fussy from 5:30-8:30. This would be a good argument for colic, except it doesn't always happen in the evening, sometimes it is in the morning or afternoon.

Back to this morning...I ran through all the issues that he has been having, from inconsolable crying, to the arching his back, shaking his head when he is eating, spraying me with formula out of frustration, more "stinky" bm's, more gassy, etc.
He wanted us to try a hypoallergenic formula for a month or 2 to help with what he suspects as a milk protein intolerance. He said 10% of all kids with a milk protein intolerance will also be soy intolerant, and suspected that this could be what we are dealing with. He was not 100% sure of what is the root cause of all this, or maybe a combination of, reflux, protein intolerance, reactive airways, or colic. At any rate, we are covered for the 1st 3 of those (we started him on pulmicort neb treatments 1x per day to help maintain his lungs now that they are starting to sound better.) And if colic is what this all is about, well...I guess he will just grow out of it.

I am just tired of trying to figure all this out, I hope that this works, so at least we have an answer. I just want Jonah to be as happy as he can be, and not be in pain because he isn't digesting the food he is trusting us to provide him with.